by Marcy Worthington, Charla Billick, Christine Kelly Kennedy and multiple contributions from members of Facebook Support Group When we have an appointment scheduled with our doctor (hopefully an MPN Specialist at some point) it is helpful to have a list of questions to be properly prepared. It also helps to know what to expect as […]
PV For Newbies – A Patient’s Perspective
Publisher’s Update – April 2026 This article was originally published in 2015 and remains a helpful overview for newly diagnosed PV patients. One important treatment update: since publication, the FDA has approved Besremi (ropeginterferon alfa-2b) for polycythemia vera. Besremi is a next-generation, long-acting interferon administered every two weeks and is the first interferon specifically FDA-approved […]
Tips for Managing Stress from MPN Cancer
Fighting MPN cancer? Be mindful of stress. by David Wallace If you have been diagnosed with MPN cancer, remember that it is just as important to take care of your mental wellbeing as your physical health. Cancer is stressful, with around one third of patients surveyed reporting stress surrounding how they would pay for treatment […]
Strategies to Beat Itching in Polycythemia Vera
How Can I Beat the Itchies? contributed by Paul Jaeger I was suffering from itching (pruritis) almost 10 years before my Polycythemia Vera was diagnosed. It’s the worst symptom my disease/condition has brought so far, although the doctor promises death at some point in my future. I had to give her $150 to tell me […]