by David Wallace, Founder, PV Reporter & MPN Cancer Connection When I was first diagnosed with polycythemia vera, nobody told me that PV remission was even possible. And the only treatment I was given, phlebotomy alone, guaranteed it wouldn’t be. Today, my blood counts are normal, and the molecular markers driving my PV are undetectable. […]
From Questions to Confidence: Piecing Together the Facts About Essential Thrombocythemia
Sponsored Post Being diagnosed with a rare, chronic blood cancer like essential thrombocythemia, or ET, can feel overwhelming and isolating. In the United States, approximately 24 out of every 100,000 people are currently living with ET. Because ET is uncommon, it may be hard to know where to turn for clear, trustworthy information—especially early in […]
Overcoming fear: How avid hiker and PV patient Gary put one foot in front of the other until he found a treatment that worked
Sponsored Post Part of my inspiration for becoming an advocate and sharing information on PV Reporter is to encourage others living with PV to educate themselves and maintain a positive mindset, despite their diagnosis. I know how it feels to hear the words, “you have cancer,” and how that fear can impact one’s outlook on […]
David’s Push for an MPN Specialist – A Polycythemia Vera (PV) Story
download Key Points: See an MPN Specialist Learn about your MPN Become your own advocate Shared decision making has become the norm Prepare questions for your doctor’s appointment A Clinical Trial may be your best option Seek support from knowledgeable patients on Facebook groups and other online resources Thank you to LLS for conducting this […]