Your central hub for MPN information, support options, and trusted resources
Curated by David Wallace, PV patient advocate and founder of MPN Cancer Connection
PV Reporter brings together MPN patient resources in one place - research data, news, patient stories, and practical tips for living with a myeloproliferative neoplasm. We cover all three related bone marrow disorders: Polycythemia Vera (PV), Essential Thrombocythemia (ET), and Myelofibrosis (MF).
MPN resources are scattered across the web. PV Reporter pulls the most useful ones together because an informed patient has a far better shot at a good quality of life.
Be sure to check out our list of MPN specialists; it's updated regularly.
Resources and Programs for MPN Patients
Last updated June 2026
2026 NCCN MPN Patient Guidelines (New)
The National Comprehensive Cancer Network (NCCN) has updated its patient guidelines for myeloproliferative neoplasms. The 2026 edition adds simplified "one-stop" sections, plain-language explanations of complex science, and guided questions to bring to your care team—making the latest research-backed knowledge easier to use.
.Click here to download the 2026 NCCN MPN Guidelines
Financial & Medication Assistance
Treatment costs shouldn't stand between you and care. Our nonprofit sister organization, MPN Cancer Connection, offers help with co-pay and medication assistance, travel and airfare support, and a curated list of MPN websites.
National MPN Organizations & Support
Leading nonprofits and organizations serving the MPN community:
- MPN Research Foundation
- MPN Cancer Connection
- Blood Cancer United (formerly the LLS)
- Cancer Support Community
- MPN Advocacy & Education International
- MPN Voice (UK)
- CancerCare
- The Bone Marrow Foundation
- NMDP (formerly Be The Match)
Disease-Specific Resources
Polycythemia Vera (PV): a slow-growing blood cancer where the bone marrow makes too many red blood cells.
- PV Reporter – What Is Polycythemia Vera?
- Blood Cancer United – Polycythemia Vera
- MPN Research Foundation – Polycythemia Vera
- Merck Manual – Polycythemia Vera
Essential Thrombocythemia (ET): an MPN in which the bone marrow produces too many platelets, raising the risk of clotting.
- PV Reporter – What Is Essential Thrombocythemia?
- Blood Cancer United – Essential Thrombocythemia
- MPN Research Foundation – Essential Thrombocythemia
- ET Signs & Symptoms – Blood Cancer United
Myelofibrosis (MF): a serious MPN marked by scarring (fibrosis) of the bone marrow, which reduces healthy blood cell production.
- PV Reporter – What Is Primary Myelofibrosis?
- Blood Cancer United – Myelofibrosis
- MPN Research Foundation – Myelofibrosis
- Mapping Myelofibrosis
- NORD – Patient Guide to Myelofibrosis (PDF)
Additional MPN Resources
- Mapping Myelofibrosis
- PharmaEssentia Source
- Voices of MPN
- Clinical Trials
- PubMed search results for Myeloproliferative Neoplasms
Online Support Communities
Closed Facebook groups offer day-to-day peer support (each requires a request to join):
- MPN Investigation & Discovery
- Polycythemia Vera Support Group
- Myelofibrosis Private Support Group
- MPN Interferon
- Polycythemia Vera, an MPN Support Group
- Essential Thrombocythemia
- Jakafi (Ruxolitinib) Treatment for MPNs
- Besremi Support
- MPNs R Us
Frequently Asked Questions About MPN Resources
Where can MPN patients get help paying for medications?
Several programs offer co-pay and medication assistance for MPN patients. Our sister nonprofit, MPN Cancer Connection, maintains a current list of patient assistance programs, plus help with travel and airfare to treatment centers. CancerCare and Blood Cancer United also provide financial and co-pay support.
What are the best MPN support groups?
Many patients find day-to-day support through closed Facebook groups dedicated to polycythemia vera, essential thrombocythemia, and myelofibrosis. Organizations like MPN Research Foundation and MPN Voice also run moderated forums and peer-support programs.
How do I find an MPN specialist?
Because MPNs are rare blood cancers, seeing a specialist is one of the most important steps you can take. PV Reporter maintains a regularly updated directory of MPN specialists and cancer treatment centers across the U.S.
Where can I find MPN clinical trials?
Clinical trials offer access to new and emerging MPN treatments. PV Reporter's MPN Clinical Trial Finder helps you search active studies for polycythemia vera, essential thrombocythemia, and myelofibrosis, and ClinicalTrials.gov lists trials worldwide.
What are the three main types of MPNs?
The three classic myeloproliferative neoplasms are polycythemia vera (PV), essential thrombocythemia (ET), and primary myelofibrosis (MF). All three are related bone marrow disorders that affect how the body produces blood cells.
Are the 2026 NCCN MPN patient guidelines free?
Yes. The National Comprehensive Cancer Network publishes its MPN patient guidelines at no cost. You can download the latest 2026 edition directly from this page.
