MPN Chronicles Podcast This podcast will cover the PV journey I endured since day 1 of diagnosis at the Mint Hill Urgent Care, the days spent with chest pain that felt like a heart attack was “coming soon.” I will discuss my trip to the Emergency Room and the frustration that followed in trying to […]
A Bad day Living with Polycythemia Vera
Publishers Note: This note was sent to me on the comments/share a story part of this website and grabbed my attention. It was written by Mike Norris. After exchanging several emails, he said “I am not always Mr Gloom and Doom, I just waxed poetic one night and wrote out what was going on inside […]
Are Myeloproliferative Neoplasms a Rare Disease?
by David Wallace Let’s Define the term “Rare Disease” ** January 2022 update: Because of the direct impact of this article, some organizations referenced herein have either removed their links or updated / changed their data. ** Now that all of the hoopla of “Rare Disease Day” has passed, it is time to peel away […]
In Memory of Robert Rosen, Founder of the MPN Research Foundation
Bob Rosen was the first MPN patient I ever met, but that was not what he wanted you to take away from meeting him. He was first and foremost a man of action and purpose. It is those qualities that made it possible for him to undertake what became his legacy to the world, after […]
