Part 3 in a New Series: “Addressing MPN Symptoms” Nutrition for MPN Patients We know diet plays a role in inflammation. Chronic inflammation may be an important driving force for clonal evolution and disease progression in myeloproliferative neoplasms (MPNs), essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). So with that in mind, eating a healthy, […]
What I Learned from going through Stem Cell Transplant for Myelofibrosis
No Time Like the Present – To Kick Cancer’s Butt by Heidi Cascarano It wasn’t in the plans. I had lived with the diagnosis of Polycythemia Vera, and then Myelofibrosis for 9 years. I was told I could live several years with them and that progression was the exception. My hope was amplified by my […]
Ten Year Anniversary Living with Polycythemia Vera Blood Cancer
Inspire by Living! by David Wallace Your numbers do NOT always reflect how you feel, so important to remember! I’ve felt like crap before and my numbers were good. How you feel is one of the most important measurement criteria, in my opinion. Counts were off on my last heme visit, about a month ago, […]
Polycythemia Vera Brain Fog
Part 2 in a New Series: “Addressing MPN Symptoms” by David Wallace This is no great “epiphany moment” article, just a quick report on a real myeloproliferative neoplasm (MPN) symptom I experience from time to time. Most mornings, I make a healthy smoothie to get me up and rolling. This morning I grabbed the wrong […]
Deb Wesloh
MPN Patient Advocate Deb Wesloh lives in Bulverde Texas. She has been married to her husband Kevin for 34 years and they have three boys; Kris, Joe and Josh. She retired as an Army Officer in 2005 and now works as government civilian at an organization that assists Soldiers separating from the Army get their […]
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