by Marcy Worthington, Charla Billick, Christine Kelly Kennedy and multiple contributions from members of Facebook Support Group When we have an appointment scheduled with our doctor (hopefully an MPN Specialist at some point) it is helpful to have a list of questions to be properly prepared. It also helps to know what to expect as […]
PV For Newbies – A Patient’s Perspective
by Dave Stewart YOU’VE JUST BEEN DIAGNOSED WITH PV… …and now, most likely, you’re looking online for info…anything…to tell you what to expect, what’s next, how long you’re going to live… First things first – Don’t panic. Easier said than done, but learning how to control your stress and keep it at a healthy level […]
The Fleischman Lab Continues Investigating the Role of Inflammation in MPN
2015 MPN Research Update by Dr. Angela Fleischman We are continuing to work on the role of inflammation in MPN. The human immune system turns on the immune response when it recognizes invaders such as bacteria or viruses by producing inflammatory proteins, also called cytokines. Cytokines are helpful to fight infection but if the immune […]
Tips for Managing Stress from MPN Cancer
Fighting MPN cancer? Be mindful of stress. by David Wallace If you have been diagnosed with MPN cancer, remember that it is just as important to take care of your mental wellbeing as your physical health. Cancer is stressful, with around one third of patients surveyed reporting stress surrounding how they would pay for treatment […]
PV Reporter Newsletter Feb 2015 – Mega News Day!
Well, what better way to kick off PV Reporter’s first newsletter of 2015! (yeah I know it is mid February:)….some big news on the MPN research front, new funding programs and a moving patient story. First up, let’s look at the new research – Mutation Order in Tumor Genes Affects Cancer Outcome. MPNs are particularly […]
LLS Focuses on Molecular Drivers for Leukemia
Leukemia & Lymphoma Society Initiatives to Halt Early Stage Myeloid Blood Cancers Fourth in ASH 2014 Series by David Wallace PV Reporter sits down with Dr Lee Greenberger, Chief Scientific Officer with LLS, to discuss initiatives to halt early stage myeloid blood cancers (MPNs & MDS). LLS has grants with Dana Farber to better understand […]
Dr Heinz Gisslinger Enlightens us – Treating MPNs with Interferon for 30 Years
AOP 2014 – The Next Generation Interferon Second in ASH 2014 Series by David Wallace Dr Heinz Gisslinger from Vienna, Austria is a pioneer in treating MPN patients with Interferon (IFN). PV Reporter sits down with Dr Gisslinger at ASH 2014 to discuss the history of Interferon treatment in MPNs, as well as AOP 2014. […]
ASH 2014 Series Coverage
by David Wallace PV Reporter covering the American Society of Hematology (ASH) 2014 conference in a series format For me personally, highlights go beyond the research that was presented (ASH 2014 Outside the Box, addresses that in detail). It was about meeting friends…old and new (in person), attending the MPN Heroes Awards Presentation, the excitement […]
Polycythemia Vera Pre-diagnosis Patient Report
Publisher’s Intro by David Wallace As a certified, red-blooded JAK2 positive Polycythemia Vera (PV) patient, I have always been fascinated by the events leading up to a PV diagnosis. By sharing our stories, perhaps we offer “a dose of comfort” to the new or recently diagnosed. When they read of struggles that other patient’s experience, […]
Leukemia & Lymphoma Society Launches New Program to Halt Progression of Myeloid Blood Cancers
The LLS and Janssen Research & Development, LLC have committed $1.7 million for the initiative White Plains, NY (October 28, 2014) – The Leukemia & Lymphoma Society has initiated a program to fund research projects seeking to better understand and, ultimately, stop progression of certain types of blood cancers from early-stage malignancies to much more […]
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