download Key Points: See an MPN Specialist Learn about your MPN Become your own advocate Shared decision making has become the norm Prepare questions for your doctor’s appointment A Clinical Trial may be your best option Seek support from knowledgeable patients on Facebook groups and other online resources Thank you to LLS for conducting this […]
MPN Facebook Group Leader, Patient Advocate Spotlight
Tips on Living with MPN – Reflections on 2020 by Christine Kennedy As the New Year is under way, its a time of reflection. MPN are an evolving disease. The difference in the years of running MPN groups has shown in what were arguments into basic knowledge of diagnoses. The arguments of diagnoses have settled […]
02-Interview with Dr. Naveen Pemmaraju, MPN Specialist, MD Anderson Cancer Center
MPN Chronicles Podcast – Interview with Dr. Naveen Pemmaraju In today’s podcast, Episode 02, I am very pleased to interview Dr. Naveen Pemmaraju, MPN Specialist from MD Anderson Cancer Center in Houston, TX. Highlights of this Episode: Insomnia in MPNs – one of the most detailed explanations on our sleep problems revealed! MDS / MPN […]
Heidi’s MPN Story – An Increasing Trend in Patient Advocacy
by Heidi Cascarano “Watch and Wait…” What other cancer, in the 21st century, is so misunderstood that your local doctor will struggle to diagnose you, possibly tell you he has a few other patients with it, then advise you to do nothing but get a therapeutic phlebotomy and take a baby aspirin? You get online […]
Questions to Ask your Doctor for a PV Appointment
by Marcy Worthington, Charla Billick, Christine Kelly Kennedy and multiple contributions from members of Facebook Support Group When we have an appointment scheduled with our doctor (hopefully an MPN Specialist at some point) it is helpful to have a list of questions to be properly prepared. It also helps to know what to expect as […]
