by David Wallace Hi, my name is David, and I am a polycythemia vera (PV) warrior. PV is a rare blood cancer. To me, living with a rare disease is not just a medical journey; it’s a testament to resilience and the power of community. Rare Disease Day, for me, is more than just a […]
Are Myeloproliferative Neoplasms a Rare Disease?
by David Wallace Let’s Define the term “Rare Disease” ** January 2022 update: Because of the direct impact of this article, some organizations referenced herein have either removed their links or updated / changed their data. ** Now that all of the hoopla of “Rare Disease Day” has passed, it is time to peel away […]
