MPN Chronicles Podcast – 04, PV Reporter, Always Ask Your Doctor for your CBC or your test results and keep a binder to Monitor your Progress by David Wallace After 2 visits to the ER, I finally had my first hematologist meeting. She reviewed the tests that were done in the ER and ran a […]
PV Reporter partners with PAN Foundation on MPN Patient Assistance Programs
Patient Assistance Programs, Medications for MPN Patients by David Wallace PV Reporter is very proud to announce a new partnership with the PAN Foundation. Myeloproliferative Neoplasm (MPN) patients may be eligible for $8,500 per year (or more if a 2nd grant is needed/approved) in assistance assuming you meet the eligibility criteria which are very reasonable. […]
Dr. Jean Jacques Kiladjian ASH 2018 RuxoPeg Phase 1/2 Trial of the Combo of Ruxolitinib and Pegasys in Myelofibrosis Patients
RUXOPEG is the first study to formally assess the safety and efficacy of Rux + IFNa combination in MF patients never exposed to either drugs before First in ASH 2018 Series by David Wallace Dr Jean Jacques Kiladjian, Professor of Clinical Hematology, Hopital Saint-Louis, Paris, France interviews with David Wallace, PV Reporter at ASH 2018. […]
Breaking news on Celgene’s Fedratinib for Myelofibrosis patients!
by David Wallace Fedratinib by Celgene, offered on Expanded Access Program (EAP) for Myelofibrosis Patients This is hot off the press! So hot, that no one has covered it until now – brought to you by PV Reporter. I knew after combing through the ASH (American Society of Hematology) abstracts that something was missing. That […]
Safety and efficacy of combo therapy of interferon-a2 and ruxolitinib in polycythemia vera and myelofibrosis
by Stine Ulrik Mikkelsen, Lasse Kjær, Mads Emil Bjørn, Trine Alma Knudsen, Anders Lindholm Sørensen, Christen Bertel Lykkegaard Andersen, Ole Weis Bjerrum, Nana Brochmann, Daniel El Fassi, Torben A. Kruse, Thomas Stauffer Larsen, Hans Torben Mourits‐Andersen, Claus Henrik Nielsen, Niels Pallisgaard, Mads Thomassen, Vibe Skov, Hans Carl Hasselbalch Abstract Interferon‐α2 reduces elevated blood cell counts […]
03: Learn Benefits of Becoming your own MPN Patient Advocate
MPN Chronicles Podcast – 03, PV Reporter, Day 3, 2nd Trip to ER in 3 Days by David Wallace Chest pain continued to worsen after 1st trip to the ER, 2 days earlier. This was an immediate cause for immediate concern and a return trip to the ER on day 3 with Polycythemia Vera (PV). […]
Spotlight on MPN Life
Publisher’s Note: PV Reporter will spotlight organizations and online MPN support groups from time to time that have a unique message to share and help MPN patients as well. I have known Jeremy since I first got involved in the Facebook Support Groups 9 years ago. He had a positive influence on me personally and […]
Cancer Survivor helping others – Newspaper article on David Wallace
PV Reporter gets Local News Coverage for his work on Patient Advocacy and MPN Awareness by Lacey Hampton David Wallace’s experience after being diagnosed with a type of blood cancer led him to want to raise awareness and help others. He created PV Reporter, a website that provides easy access to information on Myeloproliferative Neoplasms […]
Repurposed Drug Interferon for the Treatment of Polycythemia Vera
Drug Gives Woman with Polycythemia Vera – Blood Cancer the Gift of Life This patient story was featured on ABC 7, Chicago News. It is encouraging to see MPN patients share their story on the local TV news media. The MPN Research Foundation also covered Karrie’s story in their latest newsletter. I wish more patients […]
Structure of Protein Pair Provides Blueprint for Future Drugs
Publishers Note: Researcher Associate Professor Jeff Babon advises: This is very early stage research. It gives us the blueprint to begin to develop a medicine that targets the molecule, JAK2, that is responsible for PV and other MPNs in a novel way, the same way that is used by own our natural JAK2-inhibitory protein (called SOCS1). […]
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