Abstract In the 2016 revised classification of myeloproliferative neoplasms pre-fibrotic primary myelofibrosis (pre-PMF) was recognized as a separate entity, distinct from essential thrombocythemia (ET). Owing that the majority of cases falling in the pre-PMF category were previously diagnosed as ET, one may question about the need to re-evaluate the results of epidemiologic, clinical, and molecular […]
Deb Wesloh
MPN Patient Advocate Deb Wesloh lives in Bulverde Texas. She has been married to her husband Kevin for 34 years and they have three boys; Kris, Joe and Josh. She retired as an Army Officer in 2005 and now works as government civilian at an organization that assists Soldiers separating from the Army get their […]
Strategies to Beat Itching in Polycythemia Vera
How Can I Beat the Itchies? contributed by Paul Jaeger I was suffering from itching (pruritis) almost 10 years before my Polycythemia Vera was diagnosed. It’s the worst symptom my disease/condition has brought so far, although the doctor promises death at some point in my future. I had to give her $150 to tell me […]
MPN Clinical Trials Moving Forward
Two MPN Clinical Trials Progress – Phase 3 Polycythemia Vera Study and Phase 2 Myelofibrosis Study There are dozens of clinical trials at various stages of progression for Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. Some are in the recruiting stage, others still active and the balance have been completed. Both of these trials will be […]
Bone & Joint Pain in MPN Patients Explained
Pearls of wisdom (1995) by the late Dr. Gilbert Dear Members: For your information re bone and joint pains in MPN. Several of you have mentioned that you suffer from bone and/or joint pains – sometimes attributed to arthritis. I have seen a number of patients who have this complaint and it has been related […]
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