Key Points:
- See an MPN Specialist
- Learn about your MPN
- Become your own advocate
- Shared decision making has become the norm
- Prepare questions for your doctor’s appointment
- A Clinical Trial may be your best option
- Seek support from knowledgeable patients on Facebook groups and other online resources
Thank you to LLS for conducting this Podcast interview
Join us as we speak with David Wallace, a polycythemia vera (PV) patient and advocate. In this episode, David shares how he struggled to get his diagnosis, advocated to get the treatment he needed, and finally how he found a specialist that was able to treat his PV. He used his struggles to create the website, PV Reporter and nonprofit, MPN Cancer Connection, to educate patients about their disease, help them find resources, and increase awareness of MPNs. David encourages all patients to become their own advocates and to actively participate in their cancer journey.
