Pearls of wisdom (1995) by the late Dr. Gilbert Dear Members: For your information re bone and joint pains in MPN. Several of you have mentioned that you suffer from bone and/or joint pains – sometimes attributed to arthritis. I have seen a number of patients who have this complaint and it has been related […]
Jane Murray’s MPN Story
A Moving Video Account of Jane’s Pre-diagnosis MPN Medical Mishaps After listening to Jane’s video presentation, I was deeply moved by her story and asked if I could post it, along with her comments from an online forum. Thankfully, she accepted the post invite graciously and without hesitation. She presented at the MPN Awareness day on […]
Thank you for a most successful launch and join the PV Reporter mailing list!
For those who have yet to sign up for the PV Reporter mailing list, please consider doing so. I want to share our First Newsletter Update. Here is the Newsletter in it’s entirety: Successful Launch! Introduction: PV Reporter was created by David Wallace, an aspiring web designer, publisher, writer, and chief bottle washer. […]
JAK2 p.V617F detection and allele burden measurement in peripheral blood and bone marrow aspirates in patients with myeloproliferative neoplasms
Key points The sensitivity and specificity of detecting the JAK2 p.V617F mutation in peripheral blood are both 100% compared to bone marrow. The JAK2 p.V617F allele burden measured in peripheral blood is equivalent to that in bone marrow aspirate (R2=0.991; P<0.0001). See the Abstract Here
Living With MPN
Interview about Living with MPN – click here Some key take away points: See an MPN Specialist and have him work with your local doctor on an appropriate treatment plan. MPNs are uncommon and complex, incidence 1 or 2 out of 100,000 in 2019, we know that number is exponentially higher) PV is predominately found […]
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