MPN Chronicles Podcast This podcast will cover the PV journey I endured since day 1 of diagnosis at the Mint Hill Urgent Care, the days spent with chest pain that felt like a heart attack was “coming soon.” I will discuss my trip to the Emergency Room and the frustration that followed in trying to […]
A Bad day Living with Polycythemia Vera
Publishers Note: This note was sent to me on the comments/share a story part of this website and grabbed my attention. It was written by Mike Norris. After exchanging several emails, he said “I am not always Mr Gloom and Doom, I just waxed poetic one night and wrote out what was going on inside […]
Are Myeloproliferative Neoplasms a Rare Disease?
by David Wallace Let’s Define the term “Rare Disease” ** January 2022 update: Because of the direct impact of this article, some organizations referenced herein have either removed their links or updated / changed their data. ** Now that all of the hoopla of “Rare Disease Day” has passed, it is time to peel away […]
In Memory of Robert Rosen, Founder of the MPN Research Foundation
Bob Rosen was the first MPN patient I ever met, but that was not what he wanted you to take away from meeting him. He was first and foremost a man of action and purpose. It is those qualities that made it possible for him to undertake what became his legacy to the world, after […]
Ropeginterferon Induces High Rates of Response in Polycythemia Vera
Two Year Results from the First Prospective Randomized Controlled Trial Third in ASH 2017 Series by David Wallace Dr Jean Jacques Kiladjian, Professor of Clinical Hematology, Hopital Saint-Louis, Paris, France interviews with David Wallace, PV Reporter at ASH 2017. Discussing Ropeginterferon Alfa-2b Induces High Rates of Clinical, Hematological and Molecular Responses in Polycythemia Vera – […]
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