A Phrase Commonly Heard by MPN Patients by David Wallace Isn’t it amazing how well we look? In a group gathering of MPN patients you will see very few wheelchairs, walkers, canes, portable oxygen tanks or other medical devices required for daily living. Behind the facade of “well-appearing” individuals, we silently suffer from a long […]
MPN Clinical Trials Moving Forward
Two MPN Clinical Trials Progress – Phase 3 Polycythemia Vera Study and Phase 2 Myelofibrosis Study There are dozens of clinical trials at various stages of progression for Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. Some are in the recruiting stage, others still active and the balance have been completed. Both of these trials will be […]
Bone & Joint Pain in MPN Patients Explained
Pearls of wisdom (1995) by the late Dr. Gilbert Dear Members: For your information re bone and joint pains in MPN. Several of you have mentioned that you suffer from bone and/or joint pains – sometimes attributed to arthritis. I have seen a number of patients who have this complaint and it has been related […]
Jane Murray’s MPN Story
A Moving Video Account of Jane’s Pre-diagnosis MPN Medical Mishaps After listening to Jane’s video presentation, I was deeply moved by her story and asked if I could post it, along with her comments from an online forum. Thankfully, she accepted the post invite graciously and without hesitation. She presented at the MPN Awareness day on […]
Thank you for a most successful launch and join the PV Reporter mailing list!
For those who have yet to sign up for the PV Reporter mailing list, please consider doing so. I want to share our First Newsletter Update. Here is the Newsletter in it’s entirety: Successful Launch! Introduction: PV Reporter was created by David Wallace, an aspiring web designer, publisher, writer, and chief bottle washer. […]
