por David Wallace, fundador de PV Reporter y MPN Cancer Connection. Cuando me diagnosticaron policitemia vera por primera vez, nadie me dijo que fuera posible alcanzar la remisión de la PV. Y el único tratamiento que me prescribieron, la flebotomía por sí sola, garantizaba que eso no fuera posible. Hoy en día, mis recuentos sanguíneos son normales y los marcadores moleculares responsables de mi PV son indetectables. […]
MPN Self Advocacy and Education: A Chat with David Wallace
PV Reporter and MPN Cancer Connection founder David Wallace is interviewed on “PV Pod: Stories from the Marrow.” In the newly released podcast, we shed light on MPN self-advocacy and education on myeloproliferative neoplasms. Helpful tips from the podcast: “It’s normal to be depressed and angry about the situation. I think seeking help is very […]
MPN Patient Advocacy Works!
by David Wallace I got my first shot of Pegasys 3 days ago, along with my local doctor’s agreement to monitor my counts. It was not without a HARD push on my part, as Doc was still pushing the benefits of HU (hydroxyurea), while reinforcing the numerous risks with Peg. For once, I was glad […]
Ten Year Anniversary Living with Polycythemia Vera Blood Cancer
Inspire by Living! by David Wallace Your numbers do NOT always reflect how you feel, so important to remember! I’ve felt like crap before and my numbers were good. How you feel is one of the most important measurement criteria, in my opinion. Counts were off on my last heme visit, about a month ago, […]
03: Learn Benefits of Becoming your own MPN Patient Advocate
MPN Chronicles Podcast – 03, PV Reporter, Day 3, 2nd Trip to ER in 3 Days by David Wallace Chest pain continued to worsen after 1st trip to the ER, 2 days earlier. This was an immediate cause for immediate concern and a return trip to the ER on day 3 with Polycythemia Vera (PV). […]
