Living with a MPN – Beyond the Medicine, Addressing Emotional & Financial Concerns I wanted to give a quick heads up to fellow MPN patients and caregivers. The Cancer Support Community is hosting a free educational webinar. The interactive webinar will highlight several issues that may be of interest. Click on the picture (link) below […]
The Marijuana Papers
by David Wallace As I ponder back on my experience with the “evil weed” (aka – marijuana) it takes me back to my high school days or should I say daze? I partook quite regularly as a young lad and can honestly say upon reflection it may not have been the best thing for a […]
Well You Don’t Look Sick
A Phrase Commonly Heard by MPN Patients by David Wallace Isn’t it amazing how well we look? In a group gathering of MPN patients you will see very few wheelchairs, walkers, canes, portable oxygen tanks or other medical devices required for daily living. Behind the facade of “well-appearing” individuals, we silently suffer from a long […]
MPN Clinical Trials Moving Forward
Two MPN Clinical Trials Progress – Phase 3 Polycythemia Vera Study and Phase 2 Myelofibrosis Study There are dozens of clinical trials at various stages of progression for Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis. Some are in the recruiting stage, others still active and the balance have been completed. Both of these trials will be […]
Bone & Joint Pain in MPN Patients Explained
Bone and Joint Pain in Myeloproliferative Neoplasms (MPNs): Understanding the Connection by David Wallace Bone and joint pain can be a common, yet often overlooked, symptom in patients with myeloproliferative neoplasms (MPNs). While some cases are attributed to conditions such as arthritis or gout, others may be linked directly to the disease itself, particularly in […]
Jane Murray’s MPN Story
A Moving Video Account of Jane’s Pre-diagnosis MPN Medical Mishaps After listening to Jane’s video presentation, I was deeply moved by her story and asked if I could post it, along with her comments from an online forum. Thankfully, she accepted the post invite graciously and without hesitation. She presented at the MPN Awareness day on […]
Thank you for a most successful launch and join the PV Reporter mailing list!
For those who have yet to sign up for the PV Reporter mailing list, please consider doing so. I want to share our First Newsletter Update. Here is the Newsletter in it’s entirety: Successful Launch! Introduction: PV Reporter was created by David Wallace, an aspiring web designer, publisher, writer, and chief bottle washer. […]
JAK2 p.V617F detection and allele burden measurement in peripheral blood and bone marrow aspirates in patients with myeloproliferative neoplasms
Key points The sensitivity and specificity of detecting the JAK2 p.V617F mutation in peripheral blood are both 100% compared to bone marrow. The JAK2 p.V617F allele burden measured in peripheral blood is equivalent to that in bone marrow aspirate (R2=0.991; P<0.0001). See the Abstract Here
Living With MPN
Interview about Living with MPN – click here Some key take away points: See an MPN Specialist and have him work with your local doctor on an appropriate treatment plan. MPNs are uncommon and complex, incidence 1 or 2 out of 100,000 in 2019, we know that number is exponentially higher) PV is predominately found […]
Understanding Your CBC
Understanding Your CBC by Dr Sinclair This presentation breaks down the CBC (Complete Blood Count) into bite size morsels that are easy to digest and focused on MPNs. Now what do you have to learn? The Complete Blood Count and Associated Tests This presentation provides more detailed explanation of terms and is more generic in […]
